new Delhi: Microsoft CEO Satya Nadella’s son Zain, who was born with cerebral palsy (CP), died on Tuesday (March 1) at the age of 26 from the rare congenital disorder that has created a buzz. While cerebral means relating to the brain, palsy refers to weakness or problems with the use of muscles. Therefore, cerebral palsy is a group of disorders that affect movement and muscle tone or posture.
Nadella shared an experience in October 2017 when his wife was pregnant with Zayn, in a blog post titled ‘The Moment That Forever Changed Our Life’. He mentioned that his son was born on August 13, 1996 at 11:29 pm, was three pounds in total and did not cry.
“Zain was moved from Bellevue Hospital in Lake Washington to Seattle Children’s Hospital, where she had a state-of-the-art neonatal intensive care unit. Anu began her recovery from a difficult birth. I spent the night with her in the hospital and immediately went to see Zayn the next morning I had no idea how profoundly our lives would change,” Nadella said.
He continued, “During the next few years, we learned more about the pitfalls of in utero asphyxia, and how Zayn would need a wheelchair and be dependent on us because of severe cerebral palsy. I was devastated. But mostly I was sad for how things turned out for me and Anu.”
What causes cerebral palsy?
CP is caused by damage to the brain that results in abnormal development due to a lack of oxygen to the brain at birth. It affects a person’s ability to control their muscles. Many other factors can also cause problems with brain development such as maternal infection, traumatic head injury, genetic mutations, bleeding in the brain, infantile infection and fatal stroke.
Impact of CP on Affected Persons
CP can affect the whole body, or may be limited to just one or two limbs, or on one side of the body. Typically, signs and symptoms include problems with movement and coordination, speech and eating, and development, among other issues.
Children with cerebral palsy often have related conditions. These are conditions that a person has in addition to CP that can affect a child’s quality of life. Children or adults suffering from this disease may have to face difficulty in breathing, speech disorder, verbal motor impairment, digestive problems, vision loss, hearing impairment, epilepsy (seizures).
A person with severe CP may need to use special equipment to be able to walk, or he may not walk at all and may need lifelong care.
Meanwhile, on the other hand, a person with mild CP may walk a little awkwardly, but may not need any special help. The condition does not get worse over time, although the exact symptoms can change over a person’s lifetime.
It is a non-progressive disease of the brain and usually occurs before childbirth, but can also occur at birth or in early infancy (the first three years).
CP symptoms
Symptoms of CP can vary from person to person. However, Dr Arun Sharma, senior consultant neurosurgeon at the Indian Spinal Injuries Center, says that some of the common symptoms of the condition include “delayed milestones, weakness of the limbs, spasticity of the limbs, low IQ and difficulty or inability to walk.” ” Milestones are approximate points. Because when a child reaches an important stage of his development like walking or talking. Delayed milestones occur when the child does not reach a critical stage at the anticipated age.
Prevention for CP?
Since CP can develop during the early years of birth, Dr. Sharma suggests that precautions for the condition include “avoiding hypoxia during birth as well as appropriate maternal and neonatal care”.
Elaborating on the topic, Dr Manish Mannan, HOD- Pediatrics and Neonatology, Paras Hospitals Gurugram, said, “There is currently no way to prevent cerebral palsy from developing completely during pregnancy, delivery or soon after birth. This is because the exact cause of the disease is not yet fully understood. However, there are many things that parents and doctors can do to reduce the chances of CP. The father should maintain good habits and be healthy.”
He suggested that regular doctor visits are necessary to catch possible complications that could affect the development of the baby in the womb. Certain issues such as incompatible blood types can be treated to reduce the risk of CP.
Some other ways that can help prevent this condition include getting vaccinated appropriately, controlling underlying health conditions, avoiding exposure to infections or viruses that are known to affect fetal health, alcohol Including abstaining from drinking and smoking.
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Dr Mannan further explained that there are different types of CP that affect different parts of the brain and each type causes specific movement disorders.
He said, “The types of CP are spastic cerebral palsy, dyskinetic cerebral palsy, hypotonic cerebral palsy, ataxic cerebral palsy, and mixed cerebral palsy. We can divide them into mild, moderate, and severe. Spastic CP is the most common type of CP, The disease affects about 80 percent of people. It causes stiff muscles and exaggerated reflexes, making it difficult to walk. People with dyskinetic CP have trouble controlling their body movements. Disorder hand, causes involuntary, abnormal movements in the legs, and arms.”
“Hypotonic CP causes low muscle tone and excessively relaxed muscles. Ataxic CP is the least common type of CP. It is characterized by voluntary muscle movements that often appear disorganized, clumsy or jerky. Various in some people There is a combination of symptoms. Types of CP. It’s called mixed CP,” the doctor continued.
CP. treatment for
Since there is no cure for CP, only treatment can improve the lives of people who have the condition. Treatment options may include medications, treatments, surgical procedures, and other treatments as needed.
Dr. Mannan says, “Medications that reduce muscle stiffness can be used to improve functional abilities, treat pain, and manage complications related to spasticity or other cerebral palsy symptoms. Treatments include physical therapy. , occupational therapy, speech and language therapy, and recreational therapy. Surgical procedures may include orthopedic surgery and cutting of nerve fibers.”
Children and adults with cerebral palsy may require lifelong care with a medical care team. The selection of care will depend on his or her specific symptoms and needs, and needs may change over time. Early intervention can improve outcomes. The unfortunate news of Zain’s passing was shared by Microsoft in an email on Tuesday, asking officials to keep the bereaved family in their thoughts and prayers.
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